If you’re experiencing debilitating symptoms that seem to align with your menstrual cycle, getting an accurate diagnosis of PMDD (Premenstrual Dysphoric Disorder) is crucial for managing your health. However, the journey to a proper diagnosis is often anything but straightforward.
We asked members of our PMDD community to share their experiences and the challenges they faced and in this post we’ll delve into their struggles to find a PMDD diagnosis.
Your body gives signals—this ring helps you decode them
What is PMDD?
PMDD is characterized by emotional and physical symptoms that are much more severe than typical PMS. These symptoms usually occur in the luteal phase of the menstrual cycle, which is the period between ovulation and the start of menstruation. Symptoms can include severe mood swings, irritability, depression, anxiety, and physical symptoms like bloating and breast tenderness.
While the definition might seem clear, the reality of living with PMDD and getting it diagnosed is often much more complex.
The Struggle to Get Diagnosed
For many, the road to a PMDD diagnosis is long and filled with frustration. The symptoms, though severe, can be misinterpreted or dismissed, leading to prolonged periods of suffering without a clear understanding of what’s wrong.
“It took me years to find a doctor who actually listened and took me seriously. I felt like I was losing my mind each month, but when I finally got the diagnosis, it was a huge relief to know I wasn’t imagining things.”
The cyclic nature of PMDD symptoms makes it particularly challenging to diagnose. Since symptoms intensify during the luteal phase and ease up after menstruation begins, it’s easy for healthcare providers to attribute them to general mood swings or even misdiagnose them as another mental health condition like depression or anxiety.
Feeling cloudy? Shine light on symptoms with our PMDD tracker!
How to Get a PMDD Diagnosis?
Despite the challenges, visiting a healthcare provider is the first critical step. It’s important to be prepared and persistent. Here are some steps that your doctor might take:
- Symptom Tracking: You may be asked to keep a detailed record of your symptoms for at least two menstrual cycles. This helps in identifying patterns and distinguishing PMDD from other mood disorders.
“You actually start questioning, ‘Am I making this up?’ Until you track it month after month and realize it’s clockwork like you’ve never seen before!”
- Medical History Review: Your doctor will likely conduct a thorough review of your medical history, including any mental health conditions. This is because mental health issues can sometimes overlap with or exacerbate PMDD symptoms.
- Lifestyle Assessment: Factors such as smoking, alcohol use, and body weight can influence your symptoms. Your doctor will discuss your lifestyle habits to understand their potential impact.
- Physical Examination and Blood Tests: To rule out other medical conditions that could be causing your symptoms, a physical examination and possibly some blood tests may be conducted.
Want to learn the exact steps to secure a proper PMDD diagnosis? Dive into our comprehensive guide here.
The Impact of Getting a PMDD Diagnosis
Finally receiving a diagnosis of PMDD can be life-changing, both in terms of understanding your symptoms and in managing your mental health. Yet, the emotional journey to that point can be intense, as it often involves battling through feelings of self-doubt and frustration.
“It took me a while to find a doctor who was willing to listen and not automatically assume that my symptoms were just due to PMS, but getting diagnosed was a huge relief.”
“I’ve really felt like I’ve been losing myself and my mind since experiencing PMDD symptoms, so knowing that how I feel each month is down to my PMDD has been reassuring in a way.”
For many, the diagnosis doesn’t just provide a name for what they’ve been experiencing—it also offers validation that their struggles are real and that they’re not alone.
“Been dealing with it for six years and finally got a diagnosis. I’ve had some major light bulb moments, to say the least! I feel for everyone going through similar struggles.”
PMDD Diagnosis for Trans or Non-Binary Individuals
PMDD can affect anyone with a menstrual cycle, including those who are trans or non-binary. The condition might exacerbate feelings of gender dysphoria and make it even more challenging to seek help.
“I had no idea that PMDD even existed until I started experiencing extreme symptoms. I just assumed that my doctor was right and it was a bad case of PMS, so it makes me think how many of us have been told the same and are struggling as a result!”
It’s crucial that healthcare providers address your needs respectfully and offer appropriate support. If you’ve had negative experiences in the past, know that you have the right to compassionate care. The General Medical Council (GMC) offers guidelines on trans healthcare, which can be a valuable resource.
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Conclusion
Diagnosing PMDD is not always straightforward, but with the right approach and support, it is possible. Remember that keeping detailed records of your symptoms, advocating for yourself, and finding a healthcare provider who listens can make all the difference.
While a diagnosis doesn’t solve everything, knowing what you’re dealing with can be empowering and provide a clearer path to treatment.
